My parents called early last week to tell me that it was time for my grandfather to move into hospice. They'd had a long conversation with his doctor, and although it's been years since my grandfather was the same person I remember from my childhood, it was the first time that the word "Alzheimer's" was mentioned. My grandfather always expected - and wanted - to "go" first. Ever since my grandmother died in 1987, he's been talking to her picture daily and telling us goodbye at regular intervals.
But he's remarkably healthy and he hasn't died. He turned 98 last month, but this isn't a glad circumstance. My grandfather has always been a strong, intelligent, and incredibly dignified man. Over the past 10 years or so, he's gradually lost all of that. He would have been devastated to see how he's ended up. And he's outlived nearly everyone he knew. My father visits his dad daily - the nursing home is blocks from my parents house - and I know that this is incredibly hard on him, too.
But on Thursday, Grandpa "failed" his hospice test. You can only be in hospice care for a maximum of 18 months. Thursday was a "good" day, and there was no guarantee at that time that he had only 18 months yet to live. Reprieve.
Then, early Saturday morning, my dad got a call from the nursing home. My grandfather hadn't eaten or had anything to drink since that good spell on Thursday. He was unresponsive. He was agitated. He was moving to hospice immediately. So quickly!
One of his legs and his "good" hand were mottled and purple. They put him on a morphine patch to make him comfortable and ease his agitation. They offer food and water, but he's not "with-it" enough to take any. Now they're talking hours, or days. After so long, suddenly it's all happening so fast!
I don't know if I should go home or not.
On Saturday afternoon, when I got the call, I was on my way to a baby shower. Then there was a BBQ with friends that night. Today I have a meeting at work and had already arranged childcare for Ellie. Tuesday will bring our end of the year party for the bible study I attend and Ellie's last MusicGarten class of the season, as well as my book club. Thursday we have two therapy sessions and I have a night out with friends planned . . .
Of course it's not convenient. It's never convenient to make last minute schedule changes. And he won't know if I'm there or not. Would it be helpful to my parents if I'm there? Or will it be the added stress of company when they're dealing with this on their own, together?
My father would like to have my grandfather cremated, and schedule a memorial service and burial later, when it's more convenient. My grandfather currently lives up near my parents, but he will be buried where he used to live, closer to here.
Death isn't supposed to be convenient. One of the best things about a funeral is that it's always within a certain small window after someone dies. Everyone understands: you drop everything and you go.
If we don't do this now, right after he dies, when will we get around to it? I know my family. Organization and planning are not our strong suits as a group, and there *is* no such thing as a convenient time for all of us to get together.
Also, although I know it's silly and sentimental, I don't like the idea of my grandfather being cremated when my grandmother was not. Togetherness is what's always been most important to him, to both of them, and he would hate this. But it's not my decision, and it's not my father who's dying.
I just don't know if I should go home.
****
Update. It's all moot now. I'm fresh out of grandparents; my parents are the front-line generation now.
Like hitting "Publish" was a catalyst, my grandfather died moments ago. The funeral will be on Friday.
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4 days ago
12 comments:
Sarahlynn, I am sorry to hear this. Is there anything we can do? Need us to keep Lizzi?
Hey Sarahlynn,
I know I can't do anything as helpful as watching Lizzi, but you and your family will definately be in our thoughts and prayers over the next few days and weeks. Let me know if there is anything we can do.
I only met him a couple of times, but have always known how you regarded him very highly.
To hell with schedules!
So sorry to hear of this. I wish you strength.
Mike
Thanks, Rob, Portia, and Mike. I'm not terribly sad yet, though I feel awful for my parents (especially my dad). Although it's a good thing that my grandfather, who was very old and very ill for a very long time, has died, it feels like now we can finally mourn the man he was. That man was gone many years ago, but he never really *died,* he just gradually faded away, so we haven't had a chance to mourn him like we will this week.
Jessica, thank you, and could you keep Lizzi? I hadn't even thought about that yet. That would be *wonderful*. Thank you!!!
Absolutely!
Just shoot me an e-mail and let me know what day and time you will be bringing her by.
P.S. - Scott wants me to also offer to keep Ellie.
I'll be thinking of you and your family. Peace be with you all.
I'm so sorry. The death of an Alzheimer's sufferer is just so... strange, I guess, for the family, because in a way you've been letting go for some time and in a way it's just like anyone else, you never really expect it to happen. My husband's grandma was that way -- she was gone from us long before her body was worn out. But I did like what you said about finally being able to mourn the person he was.
Lots of love to your family.
Oh, if there's something I can do -- run an errand you were going to, or some such, let me know. I'm just out in Wildwood.
I had the same issues with going home to see my Grandpa, but he's still "with-it". It's hard to think of all the things you should be doing and sometimes fate takes a hand and makes the decision for you. I'm so sorry to hear of your loss. I hope your family is doing well. No matter the length of life someone has, it's always hard to say goodbye.
Oh, I'm so sorry. Thinking of you and your parents...
Jessica, I think that her grandparents, aunts, and others would kill me if I didn't bring Ellie along! (Also, I'd go insane being away from her.) But please thank Scott for the generous offer!
Thanks Mustang Sally, Camera Obscura, and Amanda!
PPB, I believe he decided against the cremation. Thankfully. It's got to be hard, being the grieving son, the one writing the obit and making all the arrangements, *and* the minister (my grandfather's church is long gone now).
Thanks, PK and Lisa!
I am so sorry for your loss. You may have regrets about not being there for your Grandfather's last moments, but I can tell you from experience that it may have been more traumatic to be there. I was sitting with my Grandmother when she died in the nursing home, but by that time she was many years and strokes removed from the woman I remember while growing up. She was just a husk by that point and her passing was truly a blessing. BUT every time I think of her now, it is of those last moments and my trauma when she died. My parents were actually at the funeral home making arrangements, so it was me and a wonderful nurse. The nurse was actually a distant relative, as many in the small northern Minnesota town were. Gosh, I'm crying just writing about it. I guess I'm saying remember him as he was ten years ago, and that he is with your Grandma again.
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