Monday, December 19, 2005

I Hate Siding with CWA

Dear [Washington Post] Editor:

I am writing in response to "One Woman's Choice" by Maria Eftimiades from your November 15th issue.

I am a liberal, pro-choice feminist, so my angry response is probably quite unlike many angry responses you've gotten.

But I believe that publishing this piece without qualification - explanation about some of the "facts" in the piece - was irresponsible.

For example, Eftimiades writes about having a child with a "severe disability" and "raising a mentally handicapped child" as if both are forgone conclusions that come with a diagnosis of Down syndrome. They're not. Before a child is born - and even for some time thereafter - it's impossible to tell how he or she will be effected by Down syndrome.

It's possible to have Down syndrome and not be "severely disabled." In fact, it's likely! It's possible to have Down syndrome and not be "mentally handicapped." It's also possible - and likely! - that a child with Down syndrome would look like and be like his or her parents, as the author seems to suggest would not happen with her potential child, once her fetus was diagnosed with Down syndrome.

I agree with Eftimiades that this is a personal decision, and that no one else's morality should be the deciding factor. But I think it's harmful to all of us, and especially to those with Down syndrome, to imply that all children born with Down syndrome are severely developmentally delayed.

Eftimiades is confident that she made the best choice - not just for herself, but also for her "baby that will never be." If she has done the research, she must know that it's possible that her child could have been pretty close to typical, could have grown up to go to college and have a career and normal life. Just as it's entirely possible that a child without Trisomy 21 could have many serious and even severe disabilities.

I know how scary it is to be in Eftimiades's position, and I do not judge her for her choice. But I do judge her for spreading fear of the unknown and misinformation with this piece. She had to make and live with a difficult decision. But making herself feel better with platitudes and false certainties about what her child's life would have been like (not worth living) serves no good while doing much harm.

Sincerely,

Sarahlynn

5 comments:

ccw said...

Very well said.

JT said...

I agree. It is an individual decision that can only be made after careful consideration of as much as factual information as possible.

Orange said...

I just read Michael Berube's latest post, in which we learn that Jamie, his teenage son with Down syndrome, is not only learning French, but making bilingual puns.

Unknown said...

A wonderful response. Thank you!

Sarahlynn said...

. . . and I haven't heard anything back . . .