A friend asked me what I thought of Missouri state Sen. John Loudon, and I had to go look him up. Hmm, I thought, weird question. For one thing, I don't live in his district. And I don't agree with most of his policy positions. I wonder why she asked me about him. That's because I hadn't read this article in the St. Louis Post Dispatch:
Down syndrome advocates praise new law.
"When Missouri Sen. John Loudon and his wife, Gina, decided to adopt their third child, they knew three things: They wanted a little boy, they would name him Samuel and he would have Down syndrome."
I've sat on this blog post for a little while, because I didn't know exactly what I wanted to say about it. I still don't; this issue is emotional and confusing for me.
I'll start with the easy part, the legislation. You might have heard of the the bipartisan Kennedy-Brownback Pre-natally and Post-natally Diagnosed Conditions Awareness Act. Last year, Sen. Loudon proposed similar legislation here in Missouri, which he called "Sammy's Law." "The law requires medical professionals to provide accurate information on the outcomes of people with Down syndrome and inform mothers with a Down diagnosis of adoption resources."
A lot of people are uncomfortable with this. When we go see our doctors, we want to be sure that we're getting their educated, scientific, medical advice, not something that's politically mandated. I share that concern, for example with regard to telling women certain non-medical things when they seek abortions, or forcing them to watch an ultrasound before undergoing the procedure. That's not medicine; that's politics, and I don't think it has any place in the exam room.
But are two big differences here.
- Doctors are failing at their jobs when it comes to telling a pregnant woman that her fetus has Down syndrome. They are spreading fear and outdated/misinformation about Trisomy 21, and sometimes allow their own biases or fear of being sued make it seem as though they are encouraging women to decide to terminate. Boo, hiss.
- The language of the bill simply requires doctors to provide "accurate information on the outcomes." No politically motivated specific language is required, and there's no script to read. It's simply requiring physicians to do what they should have been doing already; providing accurate information to patients rather than spreading fear and misinformation.
Speaking of spreading fear and misinformation, the Post-Dispatch article spreads a little bit of that themselves, with this bit: "Down syndrome is caused by an extra copy of Chromosome 21, causing varying levels of disabilities, including decreased intelligence, slackened muscle tone, gastrointestinal problems and heart defects."
That makes it sound like all people with T21 have the above list of disabilities, while that's far from the truth.
But back to Senator Loudon. I think it's great that there are people who want to adopt children with Down syndrome. Really, it's fabulous, and I appreciate that that option was one available to me when I learned that Ellie would have DS. It's not an option I seriously considered, but it felt good simply to
have options, which made my decision to have and keep Ellie feel even more like something I intentionally chose to do.
I do, however, feel a little uncomfortable with the idea of choosing a child based on any specific characteristics. I don't think it's always a bad thing. But it's something I need to think about more, because if someone told me that she wanted to adopt a child but only a blond girl, I might wonder if she's really ready to be a parent. Because there are no guarantees when it comes to having children, and I'm uncomfortable for trying to control for too many variables. What if your blond's hair darkens? Would you love her any less?
I am uncomfortable with generalizations about people with Down syndrome, as though everyone with the diagnosis is so
this or loves
that. What if your child isn't this or doesn't love that?
But I am truly grateful that there are people who are willing to adopt the unwanted, especially those who are deemed "imperfect" in some way and have a harder time finding homes, because they're older (no longer infants) or have a challenging diagnosis.
In the end, I disagree with Senator Loudon on most political issues, but I have a great amount of respect for him too.
Thanks to Flatflo for bringing the article to my attention and solving the mystery about why people were mentioning this guy to me.